
What should we organise after being told someone may only have months to live?
If someone may only have months to live, start with the supports that affect comfort, decision-making and safety: medical contacts, palliative care, medicines, home support, legal and financial documents, carer support, and the person's wishes for care.
If someone may only have months to live, start with the supports that affect comfort, decision-making and safety: medical contacts, palliative care, medicines, home support, legal and financial documents, carer support, and the person's wishes for care.
General information: This page gives general information for people in Australia. It cannot tell you exactly what is happening in one person's situation. If you have concerns about a symptom, medicine, treatment decision or change in someone's condition, contact their doctor, palliative care team, nurse or other treating health professional. Legal and financial rules can vary. Check the person's situation with the relevant service or a qualified adviser.
Make a medical contact plan
Ask the treating team:
- who is the main doctor
- whether the GP has been updated
- whether palliative care should be involved
- who to call during the day
- who to call after hours
- what symptoms need urgent help
- what medicines should be kept at home
- whether the person needs a written home care plan
Put the contact list somewhere easy to find. Share it with the people who may be caring for the person.
Ask about palliative care
Palliative care can help before the final days of life. It can support symptoms, treatment decisions, care at home, equipment, family meetings, counselling and carer needs. It can be provided at home, in hospital, in a palliative care unit, in hospice or in residential aged care.
Ask for a referral through the GP, specialist, hospital team, community nurse or other health provider. If you are told it is too early, ask who is managing symptoms now and when the referral should be reviewed.
Talk about what matters to the person
Some people want detailed planning. Others want a slower conversation. Try to ask clear, gentle questions:
- Where would you prefer to be cared for, if that is possible?
- Who do you want involved in decisions?
- Are there treatments you would or would not want?
- What would make a day feel better?
- Are there people you want to see or speak to?
- Are there cultural, spiritual or religious needs we should know about?
These conversations can change over time. Write down the main points if the person agrees.
Check legal and decision-making documents
Consider whether the person wants to organise or update:
- will
- enduring power of attorney
- substitute decision-maker appointment
- advance care plan
- advance care directive
- guardianship or medical treatment decision documents, depending on the state or territory
Advance care directive forms and rules differ across Australia. Use the correct form for the person's state or territory. If the person already has documents, make sure the treating team and decision-maker know where they are.
Review money, work and practical affairs
Practical planning can reduce stress later. This may include:
- Centrelink payments or concession cards
- Carer Payment or Carer Allowance for a carer
- work leave and flexible work options
- superannuation, insurance and beneficiary nominations
- early access to super if terminal illness rules are met
- mortgage, rent, bills and direct debits
- online accounts and passwords
- funeral wishes or prepaid funeral arrangements
myGov and Services Australia have information about payments and end of life planning. Moneysmart has information about super, insurance and financial decisions.
Plan for home care if that is wanted
If the person hopes to stay at home or die at home, ask the team what support is needed. Home care may need equipment, nursing visits, a medicine plan, after-hours support and a back-up plan if symptoms worsen or carers cannot manage.
If the person is older, My Aged Care may be relevant. The Support at Home End-of-Life Pathway may help eligible older people who have 3 months or less to live and want to remain at home. It is designed to complement palliative care services.
Support the carer
The main carer may need time off work, money advice, respite, counselling or help from family and friends. Carer Gateway can help carers find free supports. Services Australia can explain carer payments and what evidence is needed.
Do not wait until the carer is at breaking point. A tired carer may not be able to keep someone safely at home.
When to get help now
Contact the doctor, palliative care team, nurse or specialist if symptoms are new, worsening, distressing or not controlled.
Call 000 for a life-threatening emergency, such as severe breathing distress, severe uncontrolled bleeding, a sudden collapse without an expected death plan, a major injury, or immediate danger.
You may also want to read
- What is an advance care directive?
- We've just been told the illness is terminal. What happens next?
- How do I actually get palliative care?
- Can someone with a terminal illness access their superannuation early?
- What help is available if I have to stop working to care for someone who is dying?
Sources and further information
- Coping with learning you have a terminal illness - Healthdirect
- Planning for the end of your life - myGov
- How to get palliative care - Australian Government Department of Health, Disability and Ageing
- End-of-Life Pathway - Australian Government Department of Health, Disability and Ageing
- Financial help if you have a terminal illness - myGov