
What does dying from COPD look like?
Dying from COPD often involves worse breathlessness, less energy, more chest infections and flare-ups, and needing more help with daily life.
General information: This page gives general information for people in Australia. It cannot tell you exactly what is happening in one person's situation. If you have concerns about a symptom, medicine, treatment decision or change in someone's condition, contact their doctor, palliative care team, nurse or other treating health professional.
Dying from COPD often involves worse breathlessness, less energy, more chest infections and flare-ups, and needing more help with daily life. The person may have periods where treatment helps, followed by times when they do not fully recover. Near death, they may become very tired, sleepy, less able to eat or drink, and more breathless even at rest.
COPD stands for chronic obstructive pulmonary disease. It includes long-term lung conditions such as emphysema and chronic bronchitis. COPD can be unpredictable. A person may live with severe symptoms for a long time, then deteriorate after an infection or flare-up.
What families may notice
The person may become short of breath with smaller tasks, such as walking to the toilet, washing, dressing or talking. They may avoid movement because it makes breathing harder. This can lead to muscle loss and more weakness.
Cough and mucus may increase. The person may get chest infections more often, and each infection may take longer to recover from. Flare-ups can cause worse breathlessness, more phlegm, fever, wheeze, tiredness or confusion.
Eating can become tiring because breathing and swallowing both take effort. Some people lose weight and muscle even when they are trying to eat. Anxiety is common, especially when breathlessness feels frightening.
Some people use oxygen or non-invasive ventilation, such as a mask that supports breathing. These treatments can help some people. Near the end of life, the team should explain what each treatment is meant to do, whether it is still helping, and what will happen if the person no longer wants it or cannot tolerate it.
The final days
In the last days, the person may sleep much more and speak less. They may take only small sips, or may need mouth care rather than food and drink. Breathing may become shallow, fast, noisy or irregular. Skin may look pale, grey or blotchy. Hands and feet may feel cool.
Breathlessness can often be eased. Helpful care can include sitting upright, a fan or moving air across the face, calm reassurance, reducing exertion, prescribed inhalers or nebulisers, and medicines for breathlessness or anxiety. The person's own COPD action plan and palliative care plan matter.
What care can help
Palliative care for COPD is symptom support. It can be used alongside respiratory care. It may help with breathlessness, anxiety, tiredness, planning, equipment, family support and decisions about hospital care.
Ask the GP, respiratory specialist or palliative care team:
- What should we do if breathlessness gets worse?
- Is there a COPD action plan?
- When should we use rescue medicines, oxygen or ventilation?
- What signs mean hospital may help, and what signs mean comfort care is the better goal?
- Who do we call after hours?
When to get help now
Call 000 if the person is so short of breath they cannot speak, walk or sleep, has blue lips or nails, is very drowsy or confused, has chest pain, or has a life-threatening emergency, unless there is a clear expected-death plan saying what to do instead.
Contact the person's doctor, respiratory nurse or palliative care team urgently if breathlessness, mucus, fever, confusion, sleepiness or distress is new, worse than usual, or not settling with the plan.
You may also want to read
- What does dying from heart failure look like?
- What is palliative sedation?
- Can someone be sedated continuously until they die?
Sources and further information
- Chronic obstructive pulmonary disease (COPD) - healthdirect
- Chronic Obstructive Pulmonary Disease Clinical Care Standard - Australian Commission on Safety and Quality in Health Care
- Understanding palliative care and advance care planning - Lung Foundation Australia
- Shortness of breath - healthdirect